A Publication of Multiple Sclerosis Resources of Central New York, Inc. ®
Message from the Executive Director:
Welcome to year 21 for MS Resources and the 21st edition of the agency newsletter.
In February, we pay special attention to our hearts, with Valentine’s Day and the campaign for Women’s heart disease, we need to remember to do our annual blood pressure checks and any cardiac check- ups we may need. Our heart health is critical to our well-being and having MS does not protect you from any other issues. So please do yourself a favor and get checked.
We are in the midst of the preparing for the Annual Walks in Syracuse, Binghamton and Utica. We hope you will join us for one or more of these events. We have several new vendors for our awareness portion and encourage you to visit them before you register.
We are planning a variety of educational programs and please see the article from Square 1 Wellness about their informational session to discuss their mobility program. We would love to have people attend the informational meeting and consider joining the program. We are sure it will be worth your time and investment.
There will also be speakers attending a few of the support group meetings. If you see a topic that interests you, please feel free to attend the meeting. We are working on those now and hope by the spring to have all the details available to forward to you.
Stay warm, see you at the Walk!
Look inside for:
- Lhermitte’s Sign – What is it?
- Annette’s Corner
- Walks 2019
- Smile.Amazon.com Info
- Support Groups
- For Sale
What is Lhermitte’s Sign
Lhermitte’s sign is a short, intense sensation that feels similar to an electric shock passing down the neck and spine and radiating through the trunk and limbs. While not specific to multiple sclerosis, people with the disease most often report it. Some people prefer to call Lhermitte’s sign, the barber chair phenomenon because it may happen when the head is bent forward rapidly. People have likened the sensation, which is due to stimulation of irritated nerves or the spinal cord, to hitting the elbow or “funny bone.”
The most common triggers of Lhermitte’s sign include: Fatigue, Stress, Overheating and bending the neck so that the chin touches the chest
In this article, we examine the causes of Lhermitte’s sign and how it relates to MS. We also take a look at the treatment options and when someone should see a doctor about this symptom.
Causes of Lhermitte’s Sign-
Lhermitte’s sign is a shooting pain that radiates from the neck and spine.
Lhermitte’s sign tends to occur most often in people with MS.MS damages the myelin sheath, the protective, insulating material that coats the nerve fibers in the brain and spinal cord.
This damage interrupts the flow of signals across parts of the CNS, which can result in a range of sensory and motor symptoms.
The two main causes of Lhermitte’s sign are:
**demyelination, which is where damage to the myelin around the nerves occurs
**hyperexcitability, or increased firing of nerve fibers in the brain
Miscommunication between damaged nerve fibers can also cause Lhermitte’s sign.
Fatigue, stress, and heat can all trigger Lhermitte’s sign, in addition to certain neck movements. These aspects may also trigger other MS symptoms in people with the condition.
When to see a doctor –
Lhermitte’s sign is a short, intense, and often unexpected sensation, similar to an electric shock. People who experience Lhermitte’s sign for the first time might fear that their MS is worsening. However, Lhermitte’s sign does not indicate that the disease is pro-gressing. That said, people with MS who think that they may have Lhermitte’s sign should speak with a doctor about treatment options. These can help them manage the pain of Lhermitte’s sign and any other MS symptoms. A person without MS or another known demyelinating condition who ex-periences Lhermitte’s sign should consider speaking to a doctor. This is because Lhermitte’s sign can be the first indication of MS in some people.
Wearing a soft neck brace may help prevent Lhermitte’s sign. Relaxation techniques, such as meditation or massage, deep breath-ing, and stretching exercises, may be useful in pain management. Wearing a soft neck brace may also help a person avoid making neck movements that trigger Lhermitte’s sign. Electrical stimulating devices, such as transcutaneous electrical nerve stimulation units, use a mild electric current to ease pain. These electrical pulses help reduce the pain signals and relax the muscles.
They may also lead to the production of hormones called endorphins that act as natural painkillers. A doctor may prescribe a drug to treat nerve pain. Possible drugs include: amitriptyline duloxetine gabapentin , pregabalin
These medications can all help with Lhermitte’s sign in people with MS.
Lhermitte’s sign can be bothersome, frustrating, and sometimes frightening. Despite this, it is important to note that Lhermitte’s sign is not life-threatening.
This symptom does not indicate disease progression in people with demyelinating disorders such as MS. If a person with MS experiences an unexpected electric shock-like sensation down their neck and spine after bending or flexing their neck, they should speak to a doctor immediately.
Treatment options are available to manage Lhermitte’s sign and other MS symptoms. These treatments focus on changing a person’s behavior and lifestyle habits to minimize pain and stress and maximize quality of life.
Medical News Today -By Jamie Eske
Reviewed by Deborah Weatherspoon, PhD, RN, CRNA. December 2018
MS Resources Support Group Information
Interested in sharing experiences about MS, come with family/friends to a meeting.
2nd Tuesday of the month
Lincoln Middle School
1613 James St. Syracuse NY 13203
6:30PM-8:00PM School Cafeteria
Contact: Angela McBride- (315) 876-2614
Madison County Area-
1st Monday of the month
The Grand, Russell Street, Chittenango – Conference Room
Contact: Donna Denison for more info at (315) 655-3517
Auburn/Cayuga County Area
4th Tuesday of the month
Finger Lakes Mall, Rts. 5 & 20
Auburn, Community Room
Enter at Mall Entrance by Penney’s. 7PM
Contact: Susan Rusinko (315) 255-0982 or Bernie Caruana at (315) 252-1183
3rd Tuesday of the month
United Church of Christ Church (UCC) in
Bayberry, 215 Blackberry Rd. 6PM – 8 PM in Fellowship Hall, follow the signs to the meeting room.
Contact: Carolyn Vickery –(315) 409-9692 or Pat Apicella – (315) 720-7141 or (315) 303-5648
Broome County Group
4th Thursday of the month
Willow Point Nursing Home Facility
3700 Old Vestal Rd, Vestal NY
6:30PM – 8:00PM
Contact: Steve Yeager – (607) 785-7703 or Rick Fiori – (607) 321-1489
MS Breakfast Buddies
Meeting in the Binghamton area:
Contact Sue Maston: (570) 623-2302 for times and locations.
1st Tuesday of the month
Fairmount Community Library
Chapel Dr. Fairmount NY 13219
1:30PM – 3:00PM Community Room
Contact: Ericka Braundel- (315) 391-6912
Amazon.com Offers Incentives to Charity
For all of you who purchase items through Amazon.com, we have news for you. If you search Smile.Amazon.com and enter Mul-tiple Sclerosis Resources in the Charity section, we will receive .5% of your overall sale. Simple, it sure is! Log onto the computer and remember MS Resources as you make your pur-chases, but it must be entered through Smile.Amazon.com. Questions, call Jessa at (315) 438-4790. We know that there are many people who shop on-line so spread the word and don’t forget us during the year.
Post on your face-book page
So your family, friends and all your contacts will know about it. Paste it, share it, Use it!
- Amazon donates 0.5% of the price of your eligible Smile.Amazon purchases
- Smile.Amazon is the same Amazon you know. Same products, same prices, same service.
- Support your charitable organization by starting your shopping at Smile.Amazon.com.
BE Sure you…
Select a Charity (This is where you would type in Multiple Sclerosis Resources of Central New York, Inc. )
Perspective – This can be your outlook, your angle, your viewpoint on something, anything really. We all have our own perspective usually developed over time and influenced by those closest to us. So how we SEE something usually dictates our actions, reactions, our feelings, our thoughts. I recently attended my grammar school’s famous election day spaghetti supper and walking into that cafeteria as I did hundreds of times as a student, my perspective had now really changed. The cafeteria was so small to me and I wondered how did I ever think it was such a HUGE space. I believe my perspective as a child is quite different than now. In the fall of 1981 I was a fresh-man in college and again I thought my campus at Niagara University was SO LARGE that I needed an hour at least to walk to my first class. I had Biology 101 in the DePaul building with Dr. Kielly. It was a large group lecture, 135 students, sitting in alphabetical order, WOW! I left my dorm room at 7:15AM for an 8:00AM class, no trip to the dining hall, just that long walk across this expansive campus. When I arrived, it was 7:21AM. That’s right, the walk took 6 minutes, that was with a quick stop at the Post Office even. I went in the lecture hall, found my seat in the nose-bleed section and hunkered down. Needless to say, I trimmed my walking time to 6 minutes for the next 4 years (including when I lived in my apartment off campus-I was often tardy ). Aging begets wisdom and wisdom influences our viewpoints – right? Why are so many people at odds all the time concerning religion, race, sexual orientation, and the color of the sky (ha ha)? Why is it that our perspective has to be the one that is right, if it is right for you, then its right; but don’t tell someone else they are wrong, because their viewpoint is just that, it is their view, not yours. Accept everyone’s perspective on things and learn to be “in your own lane”. Life would be better if everyone realized that a persons’ per-spectives are to be respected and acknowledged.
For Sale…For Sale…For Sale
2000 Dodge Ram For Sale
6 Cylinder model 2500, asking $6,400
Auto Transmission, Cruise Control, Air Conditioning, Power Locks, AM/FM Radio, Cassette Tape Deck, Hitch (No Ball), 2 New Front tires, Full Size Spare Tire, Wheelchair Lift (62,000 Miles) Call Peter – (315) 468-6408
Wheel Chair For Sale
Quantum Edge Motorized Wheelchair
Call Kathy @ (315) 468-1933
$1500 or best offer
Acorn Electric Chair
Right side chair but can be used on either side. Split set up. 2 chairs (7 steps each) Knobs on both arms, 2 remote controls , Asking $4000 or best offer. Please contact Kim Klock –(585) 798-5288
Please call the contact numbers listed and not the office. Thank you.
Should the weather be inclement on the day of a support group, please check with the group leader or the MS Office to see if it has been cancelled. We do not want any accidents.
2019 Walk Dates
The Walks are just around the corner and the dates for each site are:
Sunday, March 3, 2019 – Destiny USA : Syracuse NY in the canyon area
Sunday, March 10, 2019 – Oakdale Mall : Binghamton NY in the center court area
Sunday, March 31, 2019 – Sangertown Sq. : New Hartford NY in the Target Hallway
All registration times are 9:30AM.
Check out the MS Awareness Day vendor tables with information and give aways.
As always we encourage you to gather your family & friends and put a team in the walk. Do you realize that MS Resources is truly the only locally run, locally staffed, local agency to serve local clients???? Inform your donors who want to keep their donations “local”.
Call to register: (315) 438-4790 or visit the website – www.msresources.org. Pledge forms may be downloaded. We have Walk Newsletters that we will send you when you register. They have all the walk information that is pertinent for the day.
Many Thanks to these Corporate Partners:
WellCare , Excellus BC/BS , Massa Construction , Capital Collection , Infusacare , Empower Federal Credit Union , Kinney Drug’s Foundation , Burns Bros Contractors , Thompson & Johnson Equipment , WestLake Development , Hofmann Sausage Company , VP Supply , Charles Heating Air Conditioning Plumbing & Electrical , Table Hopping , Anheuser Busch , MedMarijuana Consultants , Carrol’s Corp. , DeFrancisco & Falgiatano Law Firm , Pave the Way Daycare, Haun Welding Supply , Langdon’s Apothecary – Utica
Thanks to our Pharmaceutical Partners
Biogen , Novartis , Sanofi Genzyme , Genentech
Should you have the opportunity to do business with one or more of our sponsors, please patronize them. They are all very good to MS Resources and the clients we serve.
Square 1 Wellness: Mobility Training System
Our Mobility Training System allows us to assess our clients and develop customized programs based on their needs. By combining the ClearEdge toolkit with our assessment process, we are able to pinpoint weaknesses and limitations within a client’s neuromechanics. Through this identification process, each client’s customized program will target their unique limitations and allow our staff to develop the most effective fitness sessions for that client.
For a client suffering from MS or Parkinson’s disease, our programs help them regain control over their mobility and reduce the risk of falls. By combining a scientific understanding of each condition into our approach, we cater our sessions to each individual and build a safe and enjoyable fitness environment. Additionally, by utilizing the ClearEdge system, we can provide regular tracking updates for each client to show how they are improving as they progress through their program.
The Mobility Training System is also designed to assist any client recovering from an orthopedic injury. Designed as the next step after physical therapy, Square 1 Performance can help a client return to their peak physical fitness quickly by identifying any lingering issues as a client completes their treatment. This is especially valuable for clients who are striving to get back into peak conditioning quickly but are concerned about re-injury as they return to physical activity. By developing a customized wellness program for these clients, we are able to help the client focus on their recovery and reduce the risk of re-injury.
We will be doing an informational meeting on February 20, 2019 at the Fayetteville Town Center Community Room. 6-7PM. Please feel free to join us and to reserve your spot: email to firstname.lastname@example.org
For more information or directions contact Square 1 Wellness at (315) 638-3472 and ask to speak with Jarod.
Fish Bowl 25
The 25th Annual Fish Bowl will be Saturday, March 30, 2019 at the Bowl Mor Lanes in E. Syracuse. Check In is at 12:30PM and Bowling is at 1PM. $25 per person to participate and $10 for lunch only. Teams are 5 members each and there will be raffles, door prizes, food and drink. The best “fish related” tee shirts will be awarded prizes.
For an application, contact MS Resources at (315) 438-4790 or to donate an item for the raffles.
Deadline is March 15, 2019. Hope to see you there and support this great event in its 25th year.
We have a lending library
We have a durable medical equipment loan closet
We provide monthly support group meetings
We can access information you are seeking
We can email you with program notices (you must provide your email)
We are here for you…
We are the only locally run MS agency in Central New York.
Call us if you need us…..
Multiple Sclerosis Resources of CNY, Inc. ® is a source of information concerning topics on Multiple Sclerosis. The information provided to you is derived from professionals in the field and do not represent our recommendations or opinions. We do not endorse any products, services or specific treatments. For the best advice for you, please consult your physician.
WE ARE ALL SO PROUD TO BE ABLE TO ASSIST OUR CLIENTS IN OUR SERVICE AREA…
Newsletter is written and edited by: Annette Simiele
Call (315) 438-4790/1-800-975-2404
Fax (315) 438-4704
Website – www.msresources.org