A Publication of Multiple Sclerosis Resources of Central New York, Inc. ®
Message from the Executive Director:
Thanksgiving is over and so is our 20th year here at MS Resources. It is hard to believe that we have been serving the community for 20 years. Thank you to our supporters who have helped make this past year memorable and successful. Your continued support, devotion and confidence in us is truly appreciated by all.
A special thanks to my staff, Annette and Tammy for their untiring dedication to MS Resources and to the Board for their support. As we continue on our journey, and begin our 21st year, we promise to continue to meet our mission and to continue to provide quality services to our clients.
We are already working on our Annual Walks in Syracuse, Binghamton and Utica and many other events for you to participate in, as well as planning informative educational programs. We welcome any support in securing sponsors and/or participants for any event. Please contact our office, if you can help.
Indulge me for a minute as I stroll down memory lane. How many remember the holidays of the past with commercials advertising such things as:
Santa surfing down the hill on the Norelco razor Coke’s “Teach the World to Sing” Folger’s Coffee with Peter surprising his family A melting snowman eating Campbell’s soup Hershey Kisses making music And of course any Budweiser commercial These were classics that remind us of a simpler, less hectic time.
From our families to yours, please have a safe, happy, enjoyable holiday season and may the New Year be kind to all of us.
Happy Holidays to All!
Look inside for:
- What is the MS hug??
- Annette’s Corner
- Denny’s Fund Raiser
- Smile.Amazon.com Info
- Support Groups
- For Sale
The MS HUG
Medical News Today: Nov. 2017
For people with MS, an MS hug can be an unwelcome and painful part of their condition. As with many symptoms of the dis-ease, MS hugs have no clear cause, but medication and self-care can help prevent them, as well as reduce pain and discomfort.
An MS hug, also known as banding or gird-ling, is a feeling of pressure around the chest similar to having something wrapped tightly around the torso. An MS hug is likely to feel different for each person who has it.
People with MS have described the sensation in a number of ways, ranging from tickling or squeezing to crushing and burning. For some, it is very painful and makes it difficult to breathe. The feeling may last a few seconds or be a constant sensation for many months or years. Because it can cause pain and discomfort, it may affect the day-to-day activities such as exercising or sleeping.
MS damages the nerves and affects different body and brain functions. An early MS symptom is a tingling feeling that is not caused by a real trigger, such as pins and needles or a burn. The medical name for this is dysesthesia, a Greek word that translates to “abnormal sensation”.
The MS hug is a classic example of this because the feeling of pressure does not come from a real band around the body, even though it feels like it. This happens because the nerves sending information to the brain about sensations the body feels are damaged, so they transmit a confused message. Muscle spasms can also cause an MS hug. The intercostals muscles are small muscles between the ribs that help to move the chest in and out as someone breathes. If there is a muscle spasm or small movement that happens involuntarily, it may cause a stabbing pain or tightening sensation.
What to do:
Unless someone has already been diagnosed with symptoms of MS hugs and knows what they feel like, any new chest pain should be checked by a doctor, as it could be a sign of a medical emergency. People with MS, ex-periencing the sensation for the first time, should see a doctor and try to explain how it feels.
If it passes quickly, it may help if a person sits and quietly rests. If breathing is difficult or painful or the chest pain is bad, and feels like a heart attack, call 911. Be sure to tell the doctor that you have MS.
Treatment & Prevention:
An MS hug often goes away without treatment, but medication is available if the feeling persists or is painful. The medicines depend on whether the MS hug is dysesthesia or muscle spasms. Consult with your doctor to determine the right meds.
Medications for dysesthesia include: Anticonvulsants like gabapentin , Antidepressants like amitriptyline , Tylenol
Medications for muscle spasms include:
Baclofen for reducing messages sent between nerves , Carbamazepine to treat pain , Tizanidine to block the impulse that causes the muscles to tighten
Be sure to work with your doctor to make a plan for care, this may be a part of your MS that you have to monitor.
MS Resources Support Group Information
Interested in sharing experiences about MS, come with family/friends to a meeting.
2nd Tuesday of the month
Lincoln Middle School
1613 James St. Syracuse NY 13203
6:30PM-8:00PM School Cafeteria
Contact: Angela McBride- (315) 876-2614
No December Meeting
Madison County Area-
1st Monday of the month
The Grand, Russell Street, Chittenango – Conference Room
Contact: Donna Denison for more info at (315) 655-3517
Auburn/Cayuga County Area
4th Tuesday of the month
Finger Lakes Mall, Rts. 5 & 20
Auburn, Community Room
Enter at Mall Entrance by Penney’s. 7PM
Contact: Susan Rusinko (315) 255-0982 or Bernie Caruana at (315) 252-1183
No December Meeting
3rd Tuesday of the month
United Church of Christ Church (UCC) in
Bayberry, 215 Blackberry Rd. 6PM – 8 PM in Fellowship Hall, follow the signs to the meeting room.
Contact: Carolyn Vickery –(315) 409-9692 or Pat Apicella – (315) 720-7141 or (315) 303-5648
Yes, there is a December Meeting
Broome County Group
4th Thursday of the month
Willow Point Nursing Home Facility
3700 Old Vestal Rd, Vestal NY
6:30PM – 8:00PM
Contact: Steve Yeager – (607) 785-7703 or Rick Fiori – (607) 321-1489
(note new location)
MS Breakfast Buddies
Meeting in the Binghamton area:
Contact Sue Maston: (570) 623-2302 for times and locations.
1st Tuesday of the month
Fairmount Community Library
Chapel Dr. Fairmount NY 13219
1:30PM – 3:00PM Community Room
Contact: Ericka Braundel- (315) 391-6912
No December Meeting
Amazon.com Offers Incentives to Charity
For all of you who purchase items through Amazon.com, we have news for you. If you search Smile.Amazon.com and enter Mul-tiple Sclerosis Resources in the Charity section, we will receive .5% of your overall sale. Simple, it sure is! Log onto the computer and remember MS Resources as you make your pur-chases, but it must be entered through Smile.Amazon.com. Questions, call Jessa at (315) 438-4790. We know that there are many people who shop on-line so spread the word and don’t forget us during the year.
Post on your face-book page
So your family, friends and all your contacts will know about it. Paste it, share it, Use it!
- Amazon donates 0.5% of the price of your eligible Smile.Amazon purchases
- Smile.Amazon is the same Amazon you know. Same products, same prices, same service.
- Support your charitable organization by starting your shopping at Smile.Amazon.com.
BE Sure you…
Select a Charity (This is where you would type in Multiple Sclerosis Resources of Central New York, Inc. )
I think I will stroll down memory lane as Jessa did in her letter to you. I remember a time when downtown Syracuse was the place to be during the Holidays. My mom would always bring my brother and I to see Santa at Dey Brothers and then take us to lunch for a hot turkey dinner at the Dey’s tea room and of course we were dressed in our very best clothes. We rode the bus and walked up and down Salina St. checking out store displays like Edwards, Woolworths, Chappel’s , Witherall’s, Flah’s and the Addis Co. The sidewalks were bustling with people and packages (not on their cell phones) and a special little something magical in the air. The streets were lined with wreaths, etc. Christ-mas was magical; families were together sharing meals, laughter and respect for one another.
I can visualize my Grandmother making her lists, one for food, one for presents, one for cards to send and one for the poor. She would shop for the veteran’s at the VA Hospital and drop off gifts to the John Vendetti Post. She would make huge Italian meals & desserts, wrap many, many gifts and send hundreds of cards to family/friends near and far. She would make time for me to make a Christmas decoration out of the previous year’s cards which I still have. It was a “Wonderful Life”, for sure. Now things seem more hurried and people shop at the malls, they do not send cards in the mail or even take a minute to see the innocence on a child’s face as they sit on Santa’s lap. Maybe you could actually take time this year to do something of yesteryear, make a list and send a card to those you hold near and dear, I mean an actual card, not an ecard. Take 5 minutes and write a note, it can mean the world to someone. A hand-written note is really heartwarming. Make an ornament with a neighbor who is very young or a senior who may not get out to often. Take a ride with the family and look at the downtown Christmas Tree and stop for a hot cocoa. I guess I am suggesting that we all do 1 thing this year that maybe we haven’t done in a very long time. I bet it makes you feel all warm inside and hope-fully it is contagious. In a world that seems to be ever changing, be the constant that looks beyond yourself and be the best self you can be. Sometimes the best gifts do not come gift wrapped – use your imagination.
Dennys Carrier Circle Fund Raiser
Dennys will be hosting a promotion at the Carrier Circle location only to benefit MS Resources. “The Feast American Diners” campaign will offer different opportunities for you to support our agency. At the close of the month long campaign, Denny’s will present MS Resources with a check from all the proceeds they raised. 20% of sales will be donated to the agency; you must present a flyer to the server which will be available until December 31st. Contact our office and we can email the flyer to you if you do not have one.
What is the Hype on the Mediterranean Diet
The Mediterranean diet emphasizes daily consumption of fruits, vegetables, whole grains, beans, nuts and olive oil; eating fish and seafood at least a couple times a week; poultry, eggs, cheeses and yogurt in moderation and sweets and red meat for special occasions. As always, consult with a registered dietician to work out a healthy eating guide for yourself.
More on Healthy Eating…
Below are a few suggestions of simple diet adjustments that may help you successfully fight the effects of fatigue.
***Try eating small, regular meals and regular snacks; for some, more frequent mini-meals may help the body fight off fatigue and stay energized
***Plan your meals in advance so you aren’t trying to come up with something quick when you get hungry
***Don’t go more than four hours without eating something
***Stock up on ready-to-eat healthy snack items
***Keep the freezer and pantry stocked with the healthy foods, snacks
***Use a stool to sit on or rest for a period of time if you are cooking when you feel fatigued
***Make bigger batches of those healthy foods and freeze them
***Consider using a grocery home delivery system
InforMS Fall 2018, Volume 34 Issue 3
Rocky Mountain MS Center
2000 Dodge Ram For Sale
6 Cylinder model 2500, asking $6,400
Auto Transmission, Cruise Control, Air Conditioning, Power Locks, AM/FM Radio, Cassette Tape Deck, Hitch (No Ball), 2 New Front tires, Full Size Spare Tire, Wheelchair Lift (62,000 Miles)
Call Peter – (315) 468-6408
Wheel Chair For Sale
Quantum Edge Motorized Wheelchair
Call Kathy @ (315) 468-1933
$1500 or best offer
Info on Chair Yoga
For those who have called and inquired about a Chair Yoga class, here is the info: Vyana Yoga – 131 W. Seneca St. #4, Manlius NY Mondays at 1:15PM.
Should the weather be inclement on the day of a support group, please check with the group leader or the MS Office to see if it has been cancelled. We do not want any accidents.
Special thanks to all those who selected MS Resources through facebook, to receive funds from a birthday or anniversary.
We are most grateful for your thought-fulness and support. It is a great way to raise funds for the agency. Spread the word…
2019 Walk Dates
The Walks are just around the corner and the dates for each site are:
Sunday, March 3, 2019 – Destiny USA : Syracuse NY in the canyon area
Sunday, March 10, 2019 – Oakdale Mall : Binghamton NY in the center court area
Sunday, March 31, 2019 – Sangertown Sq. : New Hartford NY in the Target Hallway
As always we encourage you to gather your family & friends and put a team in the walk. Also, if you have any contacts at any local companies that you think may be interested in being a sponsor, please forward that info on to Annette. We would greatly appreciate if you could make the initial introduction for us and then we will follow it up. Thank you.
Magic M & M Bar Cookies
1 stick (8 tablespoons) unsalted butter, melted, plus more for buttering the dish
14 chocolate graham crackers
One 14-ounce can sweetened condensed milk
One 10-ounce bag mint chocolate chips
1 cup cocktail peanuts, coarsely chopped
2 cups mini marshmallows
1/2 cup red and green candy-coated chocolates, such as M&M’s
1/2 cup coarsely chopped candy canes
1/4 cup red and green sprinkles
Position an oven rack in the center of the oven and preheat to 350 degrees F. Line a 9-by-13-inch baking dish with foil, leaving a 2-inch overhang on both sides. Butter the foil.
1. Pulse the graham crackers into fine crumbs in a food processor. Add the melted butter and pulse to combine (the mixture should hold together when squeezed). Transfer the mixture to the prepared baking dish and press it into the bottom in an even layer, using the bottom of a measuring cup to help. Pour the sweetened condensed milk over the crumbs. Sprinkle the chocolate chips, peanuts, marshmallows, M&M’s, candy canes and sprinkles over the condensed milk.
2. Bake until the sides are golden brown and begin to pull away from the baking dish, 30 to 35 minutes. Let cool completely, about 1 hour. Using the foil liner as handles, lift the bars out of the baking dish; remove the foil. Cut into 24 bars.
Copyright 2018 Television Food Network, G.P. All rights reserved.
Many Languages – One Sentiment
Merry Christmas ——–
Joyeux Noël! French (France)
Buon Natale! Italian (Italy)
Frohe Weihnachten! German (Germany, Austria, Switzerland)
Feliz Navidad! Spanish (Spain and Gibraltar, Mexico and Central America; South America)
Nollaig Shona Dhuit! Irish (Ireland) Christmas in Dulbin
Boas Festas! Portugese (Portugal) Zalig
Kerstfeest! Dutch (Belgium)
Prettige Kerstdagen/ Zalig Kerstfeest! Dutch (Netherlands)
Wesolych Swiat Polish (Poland)
Gëzuar Krishlindjet! Albanian (Albania)
Eftihismena Christougenna! Greek (Greece)
Sretan Bozic! Croatian (Croatia)
Craciun Fericit! Romanian (Romania, Moldova)
Merii Kurisumasu! Japanese (Japan)
Read more: https://metro.co.uk/2016/12/19/how-to-say-merry-christmas-in-22-different-languages
Call us if you need us…..
Multiple Sclerosis Resources of CNY, Inc. ® is a source of information concerning topics on Multiple Sclerosis. The information provided to you is derived from professionals in the field and do not represent our recommendations or opinions. We do not endorse any products, services or specific treatments. For the best advice for you, please consult your physician.
Happy New Year…
WE ARE ALL SO PROUD TO BE ABLE TO ASSIST OUR CLIENTS IN OUR SERVICE AREA…
Newsletter is written and edited by: Annette Simiele
Call (315) 438-4790/1-800-975-2404
Fax (315) 438-4704
Website – www.msresources.org