A Publication of Multiple Sclerosis Resources of Central New York, Inc. ®
Message from the Executive Director:
Vintage cars roll into Syracuse every July for the Syracuse Nationals event at the NY State Fairgrounds. Seeing these cars, trucks, etc. remind me of when life was just a bit simpler. I love looking at their sheen and shine and reflect back on the good old days.
I would encourage all those reading our newsletter to take time to sit outside on a cool summer night and read a book or take a walk along a beach, or park and take just a moment, before it’s gone, to live life just a little simpler.
We keep up such a fast pace here at MS Resources that it is hard to believe that golf is upon us and plans are underway for the fall events like the Health Fair, Paint Night and Comedy Night. We hope that you will find the time to join us at one or more of these as well as any educational programs that may be held in your area.
Also, please let me remind you that we have a wonderful lending library with numerous books on a variety of topics. We have books on Cognitive Issues, Fatigue, Questions and Answers about MS and of course many, many pieces of educational literature on all the pharmaceutical drugs available for the treatment of MS. Books can be loaned for a month at a time and pamphlets and literature on the drugs are free to keep. Call the Office at (315) 438-4790 and we will mail the book you want.
Wishing you sunny skies for the rest of the summer and enjoy all that these days have to offer, soon we will be knee deep in that white stuff!
Look inside for:
- Intermittent Fasting & MS
- Annette’s Corner
- Men’s Weekend Info
- Smile.Amazon.com Info
- Support Groups
- 7th Annual Poker Walk
Intermittent Fasting May Benefit People with MS
Published Tuesday, July 10, 2018
By Maria Cohut
Fact Checked by Jasmin Collier
In multiple sclerosis, the immune system mistakenly attacks and harms myelin, which is the “sheath” that protects axons (or the projection that links nerve cells to one another and lets them communicate). This can result in muscle weakness, fatigue, coordination problems, and chronic pain.
Can intermittent fasting help to manage MS symptoms?
So far, no cure has been developed for (MS), and available treatments focus on managing the symptoms. Some suggest that specific dietary interventions could help with the management of MS, but as yet, there is insufficient research to lend full support to such claims.
Now, specialists from Washington University School of Medicine in St. Louis, MO, and the Jackson Laboratory for Genomic Medicine in Farmington, CT, are testing the effectiveness of one dietary approach in the management of this condition: intermittent fasting.
According to study co-author Dr. Laura Piccio, “People hear these miraculous stories about patients recovering the ability to walk after they started on this diet or that, and everyone wants to believe it.”
But, she adds, “All we have right now are anecdotes. The fact is that diet may indeed help with MS symptoms, but the studies haven’t been done.” After testing the effect of intermittent fasting on a mouse model of MS and obtaining promising results, Dr. Piccio and team conducted a pilot study on human patients to verify if the positive outcomes held strong. The researchers’ findings are now published in the journal Cell Metabolism.
Diet style may influence symptoms
Initially, Dr. Piccio and colleague Dr. Yanjiao Zhou conducted research on a mouse model of MS. In this study, some animals were on a limited fasting regimen, in which they were fed every other day for a period of 4 weeks.
Another set of mice was allowed to eat freely over the same period. All the mice then received a type of immunization meant to trigger symptoms consistent with MS.
Following these steps, all the rodents continued their respective diet regimens for an additional 7 weeks. The researchers found that the mice placed on an intermittent fasting diet were more resilient to neurological damage and were less likely to develop symptoms such as muscle weakness, paralysis, and difficulty in moving.
Some of the rodents exposed to intermittent fasting did develop symptoms consistent with MS, however these were less critical than those seen in the mice that were fed plentifully on a daily basis. Also, the fasting rodents appeared to be less exposed to inflammation, as they had lower levels of pro-inflammatory cells (T helper 17 cells), and instead they had higher levels of immunoregulatory cells (regulatory T cells).
“There are several possible ways fasting can affect inflammation and the immune response,” says Dr. Picco. “One is by changing hormone levels.”
“We found that levels of the anti-inflammatory hormone corticosterone were nearly twice as high in the fasting mice. But it also could act through the gut microbiome.”
The researchers explain that the fasting mice also appeared to have more diverse gut microbiota, which has been linked to better health outcomes. Thus, the rodents following the intermittent fasting regimen had higher levels of the Lacto-bacillus bacterium, a probiotic whose abundance in the gut has been linked to less severe MS symptoms.
Also, when the researchers tried transferring gut bacteria collected from the fasting mice to the guts of the non-fasting ones, they noticed that the latter became more resilient to MS-like symptoms. This, the investigators say, suggests that certain gut bacteria may play a protective role.
Following these promising results in mice, Dr. Piccio and team started a pilot trial of 16 patients with MS. The participants were all asked to follow an intermittent energy restriction diet, which limited their calorie intake every other day for a period of 2 weeks. At the end of the pilot trial, the team found similar changes in the participants’ gut microbiota and immune systems to the ones previously observed in mice.
Now, Dr. Piccio and team are organizing a much larger study focusing on patients with relapsing-remitting MS, which is the most common form of this condition. It is characterized by bouts of symptoms with stable periods in-between. This study will follow the participants over a 12-week period, during which half of the volunteers
will continue to follow their usual Western-style diet without any alterations, whereas the other half will follow their usual diet for only 5 days each week and only consume 500 calories of vegetables for 2 days per week. All the participants will continue to follow any injectable MS treatment already prescribed, and any patients experiencing a relapse during the study will receive the necessary treatment. “We’re not looking for clinical benefit, although we certainly hope to see an improvement,” states Dr. Piccio.
“Because MS is so variable and people with relapsing-remitting MS can be stable and nearly symptom-free for long periods, you’d need a huge study to see any benefit,” she explains.
“Instead,” adds Dr. Piccio, “what we want to find out is whether people on limited fasts undergo changes to their metabolism, immune response, and microbiome similar to what we see in the mouse.”
The researchers caution that such dietary changes — even if found effective — will not cure the disease, though they could make an important difference to MS patients’ lives.
“I don’t think any physician working with this disease thinks you can cure MS with diet alone,” explains Dr. Piccio. “But we may be able to use it as an add-on to current treatments to help people feel better.”
Medical News Today – July 2018
MS Resources Support Group Information
Interested in sharing experiences about MS, come with family/friends to a meeting.
2nd Tuesday of the month
Lincoln Middle School
1613 James St. Syracuse NY 13203
6:30PM-8:00PM School Cafeteria
Contact: Angela McBride- (315) 876-2614
No Meeting in August.
Madison County Area-
1st Monday of the month
The Grand, Russell Street, Chittenango – Conference Room
Contact: Donna Denison for more info at (315) 655-3517
Auburn/Cayuga County Area
4th Tuesday of the month
Finger Lakes Mall, Rts. 5 & 20
Auburn, Community Room
Enter at Mall Entrance by Penney’s. 7PM
Contact: Susan Rusinko (315) 255-0982 or Bernie Caruana at (315) 252-1183
No Meeting in August.
3rd Tuesday of the month
United Church of Christ Church (UCC) in
Bayberry, 215 Blackberry Rd. 6PM – 8 PM in Fellowship Hall, follow the signs to the meeting room.
Contact: Carolyn Vickery –(315) 409-9692 or Pat Apicella – (315) 720-7141 or (315) 303-5648
No Meeting in August
Broome County Group
4th Thursday of the month
Willow Point Nursing Home Facility
3700 Old Vestal Rd, Vestal NY
6:30PM – 8:00PM
Contact: Steve Yeager – (607) 785-7703 or Rick Fiori – (607) 321-1489
(note new location)
MS Breakfast Buddies
Meeting in the Binghamton area:
Contact Sue Maston: (570) 623-2302 for times and locations.
1st Tuesday of the month
Fairmount Community Library
Chapel Dr. Fairmount NY 13219
1:30PM – 3:00PM Community Room
Contact: Ericka Braundel- (315) 391-6912
(note day change)
Amazon.com Offers Incentives to Charity
For all of you who purchase items through Amazon.com, we have news for you. If you search Smile.Amazon.com and enter Mul-tiple Sclerosis Resources in the Charity section, we will receive .5% of your overall sale. Simple, it sure is! Log onto the computer and remember MS Resources as you make your pur-chases, but it must be entered through Smile.Amazon.com. Questions, call Jessa at (315) 438-4790. We know that there are many people who shop on-line so spread the word and don’t forget us during the year.
Post on your face-book page
So your family, friends and all your contacts will know about it. Paste it, share it, Use it!
- Amazon donates 0.5% of the price of your eligible Smile.Amazon purchases
- Smile.Amazon is the same Amazon you know. Same products, same prices, same service.
- Support your charitable organization by starting your shopping at Smile.Amazon.com.
BE Sure you…
Select a Charity (This is where you would type in Multiple Sclerosis Resources of Central New York, Inc. )
This issue’s article written by Donna Romano – Annette’s Corner will return this Fall.
Just as MS Resources of CNY is beginning its twenty-first year of caring for all of us, I am entering my twenty-first year with mul-tiple sclerosis. You would think that by now I would have extremely well-developed coping mechanisms to deal with the disease.
I mean, I know how to structure my day so that I can make it through without collapsing in exhaustion (most days). With twenty years of practice, though, I expected to be better-attuned to my body’s signals and more able to intercept the incoming unfriendly misfirings to prevent or delay problems. It doesn’t always work that way, and some days I’m still surprised with unusual and unwanted surprises, especially in the past few months. I keep trying, I vent a little or a lot, and I attempt to fill my time with people and activities that are fun and meaningful to me.
A couple of days ago I had the chance to hang out with my two grown daughters. On the way to dinner, we stopped at a craft store to pick-up supplies for our current obsess-sions. It was there, in the modeling clay aisle, that I was given an unexpected reality check. I asked the man stocking the shelf what I thought was an innocent question. “Will there be a coupon for this Sculpey in tomorrow’s newspaper?” He straightened up, this man who was about my age, and walked closer to us. “Coupon? Newspaper?”, he chuckled. So began his lecture on economics, which included the cost of advertising per store, the target audience the store sought and so on. He turned to my daughter and asked if she re-ceived a real newspaper, and when she said a truthful No, I was cast adrift, alone. I told him that I got the Sunday newspaper and enjoyed it, and he said, “Of course you do. I suppose you have a landline phone as well.” I assured him that I did not have a landline and then I began to defend myself by saying things like “I usually don’t cut out the coupon, I just pull it up on my phone at the register….” as if I needed to convince him that I wasn’t exactly a tech-dinosaur. He continued a bit longer about the chasm be-tween MY generation and the next, until I interrupted him by saying, “That’s enough of a reality check. In a few minutes, I’ll just go out to my car and cry about it all.” Of course I was jesting, but one thing he didn’t know. I had been thinking (too much) about the unwanted changes happening around me–the types of things that no one can totally control anyway– like an aging body that finds more ways to disappoint, or the loss of a loved one, or the awareness that the grandchildren are growing up way too fast. All evidence of the truths: Time marches on and everything changes.
The day after that lecture, I had an im-promptu trip out to the famously-huge tent sale at Mackenzie-Childs in Aurora, NY. In case you don’t know what Mackenzie-Childs is, it is a place known for its pottery and home decor, recognizable by its black and white check patterns and colorful designs. For me, it’s a lovely one hour trip from Syracuse, out through Skaneateles and Auburn and some lovely countryside. I asked Vinny if he felt like taking a ride out to the Finger Lakes, and, specifically, Mackenzie-Childs. Now, I had told him about the big sale, but I left out details like long lines and massive crowds. When we ar-rived, we were directed to the very long line, and as we stood in the moderately hot sun, he got the look that said, “We’re going home.” I stood my sweaty ground and exCorner Cont’d
plained that this was something I’d always wanted to do, and we were here, and I was staying. That was when a worker arrived alongside us and asked if we wanted ice water or a watermelon mojito, and I thought that the hospitality was pretty special at this place! (But no, neither were free, silly me.) Then the line surged forward by a giant leap, and we were under the shaded walkway, and very close to the barn that housed all the enamelware. We both relaxed and began to enjoy our time together. Being there re-minded us of our shopping excursions to the Williamsburg Pottery when we were first married and living in Virginia–back when we were young and strong (and not bothered by the heat!). Like then, it was fun peeking into the huge bins and browsing through the tents. The grass was fairly level, no divots, and I felt pretty steady on my feet. And then we moved into the center aisles where the breezes from the huge misting fans didn’t reach and soon my mind and my body began to operate in slow-motion. Thanks a lot, MS. You’re such a buzzkill.
When we got to the car, my weather app said the temperature’s real feel was 103F.
I could only imagine the real feel under the tent!! As we sat and waited for the car to cool off, Vinny looked at me and said, “You did good.” Well, you know how helpful, kind, loved ones say things that are in-nocuous to them, but that very same phrase riles you up? Phrases like, “But you look so good.” or “Everyone gets tired.” This was one of those phrases, and it came from my true companion of 38 years!! I started off by telling him that I was sure he meant that as an accolade, but that I received it as a blow. My explanation followed. “I want to go just one day…. one morning… one hour!…without weighing how I feel or what I can/can’t do against the unfair and always-changing measuring stick of MS! And even more, I want to go for stretches of time with-out anyone judging me against a parameter that is set for ‘people with MS’. If I were ‘normal’, we would just be laughing and talking instead of interrupting our good time with judgments and kudos for me doing things that thousands of people are doing here in droves. I just want normal!”
Thankfully for me, he didn’t answer with the quip that I wasn’t normal, even without MS, and I never told him that the feelings that came up in me after his comment sur-prised me as well. We drove back home with not another word spoken about it. But the fact remained: I did do good. Or well. And just like a normal person, I checked off something from my very vague bucket list, and I have a beautiful, funky Mackenzie-Childs teapot to prove it!
Health Fair on Women’s Day at the Great NY State Fair
Visit MS Resources at Women’s Day, Wednesday, August 29, 2018 at the NY State Fair. Under the pavilion in Chevy Court there will be many non-profit organizations assembled for you to gather information and ask questions. (Many have giveaways too)! This is a great chance to visit many worthwhile agencies in our community in one stop.
7th Annual Bridie Manor Poker Walk
The 7th Annual Bridie Manor Poker Walk is scheduled for Saturday, September 8, 2018. Participants will walk to several Oswego area businesses gathering playing cards to make the best Poker Hand. To register for the event, visit the website at www.msresources.org and click on special events and visit the Poker Walk page, or call the Office at (315) 438-4790.
Cost – $15 includes: Poker Walk, Lunch
There will be a 50/50 raffle and auction items. Grand Prizes awarded to the Best Poker Hands. Top prizes include a large screen TV, kettle grill, much more.
This event starts at Bridie Manor, 1830 Bridie Square in Oswego NY and finishes there with a picnic style lunch. If you want to participate but cannot be in attendance, send in the fee and we will play the hand for you! Join us for lunch and play a hand while you munch away, still only $15. Call today and don’t delay….
Annual Men’s Weekend Get-Away
The Annual Men’s MS Weekend Get-Away is scheduled for September 21, 22, 23, 2018 at the White Eagle Conference Center in Hamilton NY. Spend a great few days with other men with MS sharing experiences, enjoying the fun and games and wonderful food. The cost is $135 for the entire weekend which covers, all food and lodging. Scholarship dollars are available.
Call today for the application and we look forward to seeing you there. We guarantee a great time!!!!
MS Resources Health & Wellness Fair
October 16, 2018 Barbagallo’s Free and Open to the General Public Visit Vendors, ask questions, pick up goodies. More details to follow. Save the date. There will also be an MS Educational Program.
Annual Mike Goss Memorial Comedy Night Scheduled
October 19, 2018 at Barbagallo’s Restaurant, Molloy Rd.
Food/Drink – on your own
More details to follow, but save the date!
Painting with a Twist
November 8, 2018
Save the date, more info to follow in later newsletters.
Call us if you need us…..
Multiple Sclerosis Resources of CNY, Inc. ® is a source of information concerning topics on Multiple Sclerosis. The information provided to you is derived from professionals in the field and do not represent our recommendations or opinions. We do not endorse any products, services or specific treatments. For the best advice for you, please consult your physician.
WE ARE ALL SO PROUD TO BE ABLE TO ASSIST OUR CLIENTS IN OUR SERVICE AREA…
Newsletter is written and edited by: Annette Simiele
Call (315) 438-4790/1-800-975-2404
Fax (315) 438-4704
Website – www.msresources.org