A Publication of Multiple Sclerosis Resources of Central New York, Inc. ®
Message from the Executive Director:
Spring has finally arrived in Syracuse and we can shed (I hope) the big bulky winter coats.
MS Resources kicked off the 20th Anniversary year at the Syracuse Walk on Sunday, March 4th. We had a tremendous turn out with over 500 walkers and about 18 vendors for our MS Awareness portion. Thanks to everyone who walked, sponsored the event or a walker, volunteered or was a vendor. We had a great day, over $52,000 in pledges and more still coming in. With Binghamton still wrapping up and Utica in the next week, it should be a marvelous total for the 3 Walk Events. As soon as we know the overall total, it will be announced in the June newsletter.
This is the issue of the newsletter where all you ladies who are looking to get –away for the weekend need to call and request your application for the Retreat. Details are inside the newsletter.
Also, there are spaces available for the Annual Fish Bowl event, please call the office if you need a registration form or more information. Let’s sell it out like we have in the past. Support Kathy Vadala in her annual fund raising bowling event!
See you at one of the many events and programs scheduled for April & May.
Look inside for:
- Fish & MS
- Fish Bowl
- Annette’s Corner
- Syracuse Walk Totals
- Smile.Amazon.com Info
- April 14th HUGE Fund Raiser – Syracuse
- April 14th Fund Raiser – Munnsville
- Women’s Weekend Applications
A surprise finding by medical scientists may lead to the development of a possible treatment for multiple sclerosis (MS).
While examining human brain tissues, re-searchers from the University of Alberta and McGill University unexpectedly found that the tissues from people who had MS con-tained an extremely high level of a protein named calnexin, compared with those who hadn’t had MS.
The researchers then tested the susceptibility of mice lacking calnexin to the mouse model of human MS (experimental autoimmune encephalomyelitis), and were astonished to find that the mice lacking the protein were completely resistant to the disease.
The causes of MS are not well understood. Symptoms vary widely but often include cognitive impairment, dizziness, tremors and fatigue. These problems are caused by a type of white blood cells called T cells that, after becoming activated, find their way into the brain and attack the protective covering — myelin — of neurons in the brain and spinal cord, causing inflammation and damage to the central nervous system.
“It turns out that calnexin is somehow in-volved in controlling the function of the blood-brain barrier,” said Marek Michalak, a distinguished professor of biochemistry at the U of A. “This structure usually acts like a wall and restricts the passage of cells and substances from the blood into the brain. When there is too much calnexin, this wall gives angry T cells access to the brain, where they destroy myelin.”
Canada has one of the highest rates of MS in the world, with an estimated one in 340 Canadians living with the disease.
“We think this exciting finding identifies calnexin as an important target for developing therapies for MS,” said Luis Agellon, a professor at the McGill School of Human Nutrition. “Our challenge now is to tease out exactly how this protein works in the cells involved in making up the blood-brain barrier. If we knew exactly what calnexin does in this process, then we could find a way to manipulate its function to promote resistance for developing MS.”
The study, published in JCI Insight, was funded by the Canadian Institutes of Health Research.
Materials provided by University of Alberta Faculty of Medicine & Dentistry. Note: Content may be edited for style and length.
Eating fish at least once a week or eating fish one to three times per month in addition to taking daily fish oil supplements may be associated with a reduced risk of multiple sclerosis (MS), according to a preliminary study released that will be presented at the American Academy of Neurology’s 70th Annual Meeting in Los Angeles, April 21 to 27, 2018. These findings suggest that the omega-3 fatty acids found in fish may be associated with lowering the risk of developing MS.
Multiple sclerosis is a disease of the central nervous system that affects communication between the brain and other parts of the body. With MS, the body’s immune system attacks myelin, the fatty white substance that insulates and protects the nerves. This dis-rupts the signals between the brain and the rest of the body. Symptoms of MS may in-clude fatigue, numbness, tingling or dif-ficulty walking. The first episode of MS symptoms, lasting at least 24 hours, is known as clinically isolated syndrome. There is no cure for MS.
“Consuming fish that contain omega-3 fatty acids has been shown to have a variety of health benefits, so we wanted to see if this simple lifestyle modification, regularly eat-ing fish and taking fish oil supplements, could reduce the risk of MS,” said study author Annette Langer-Gould, MD, PhD, of Kaiser Permanente Southern California in Pasadena, Calif., and a member of the American Academy of Neurology.
For this study, researchers examined the diets of 1,153 people with an average age of 36 from a variety of backgrounds, about half of whom had been diagnosed with MS or clinically isolated syndrome.
Participants were asked about how much fish they regularly ate. High fish intake was defined as either eating one serving of fish per week or eating one to three servings per month in addition to taking daily fish oil supplements. Low intake was defined as less than one serving of fish per month and no fish oil supplements. Examples of fish con-sumed by study participants include shrimp, salmon and tuna.
The study found that high fish intake was as-sociated with a 45 percent reduced risk of MS or clinically isolated syndrome when compared with those who ate fish less than once a month and did not take fish oil sup-plements. A total of 180 of those with MS had high fish intake compared to 251 of the healthy controls.
The study also looked at 13 genetic variations in a human gene cluster that regulates fatty acid levels.
Researchers found two of the 13 genetic variations ex-amined were associated with a lower risk of MS, even after accounting for the higher fish intake. This may mean that some people may have a genetic advantage when it comes to regulating fatty acid levels.
While the study suggests that omega-3 fatty acids, and how they are processed by the body, may play an important role in re-ducing MS risk, Langer-Gould emphasizes that it simply shows an association and not cause and effect. More research is needed to confirm the findings and to examine how omega-3 fatty acids may affect inflam-mation, metabolism and nerve function.
Fish such as salmon, sardines, lake trout and albacore tuna are generally recommended as good sources of omega-3 fatty acids.
MS Resources Support Group Information
Interested in sharing experiences about MS, come with family/friends to a meeting.
2nd Tuesday of the month
Lincoln Middle School
1613 James St. Syracuse NY 13203
6:30PM-8:00PM School Cafeteria
Contact: Angela McBride- (315) 876-2614
Madison County Area-
1st Monday of the month
The Grand, Russell Street, Chittenango – Conference Room
Contact: Donna Denison for more info at (315) 655-3517
Auburn/Cayuga County Area
4th Tuesday of the month
Finger Lakes Mall, Rts. 5 & 20
Auburn, Community Room
Enter at Mall Entrance by Penney’s. 7PM
Contact: Susan Rusinko (315) 255-0982 or Bernie Caruana at (315) 252-1183
3rd Tuesday of the month
United Church of Christ Church (UCC) in
Bayberry, 215 Blackberry Rd. 6PM – 8 PM in Fellowship Hall, follow the signs to the meeting room.
Contact: Carolyn Vickery –(315) 409-9692 or Pat Apicella – (315) 720-7141 or (315) 303-5648
Broome County Group
4th Thursday of the month
Willow Point Nursing Home Facility
3700 Old Vestal Rd, Vestal NY
6:30PM – 8:00PM
Contact: Steve Yeager – (607) 785-7703 or Rick Fiori – (607) 321-1489
(note new location)
MS Breakfast Buddies
Meeting in the Binghamton area:
Contact Sue Maston: (570) 623-2302 for times and locations.
1st Tuesday of the month
Fairmount Community Library
Chapel Dr. Fairmount NY 13219
1:30PM – 3:00PM Community Room
Contact: Ericka Braundel- (315) 391-6912
(note day change)
Amazon.com Offers Incentives to Charity
For all of you who purchase items through Amazon.com, we have news for you. If you search Smile.Amazon.com and enter Mul-tiple Sclerosis Resources in the Charity section, we will receive .5% of your overall sale. Simple, it sure is! Log onto the computer and remember MS Resources as you make your pur-chases, but it must be entered through Smile.Amazon.com. Questions, call Jessa at (315) 438-4790. We know that there are many people who shop on-line so spread the word and don’t forget us during the year.
Post on your face-book page
So your family, friends and all your contacts will know about it. Paste it, share it, Use it!
- Amazon donates 0.5% of the price of your eligible Smile.Amazon purchases
- Smile.Amazon is the same Amazon you know. Same products, same prices, same service.
- Support your charitable organization by starting your shopping at Smile.Amazon.com.
BE Sure you…
Select a Charity (This is where you would type in Multiple Sclerosis Resources of Central New York, Inc. )
Reflecting on 20 Years of Service:
Enriching our organization over the past 2 decades involved many factors, one very important one and the basic building block of our agency has been love. It has been out of love for the mission, the clients and the daily tasks that we have been a successful organization. I have seen over these last twenty years how we have been embraced by the communities we serve and their sup-port to walk along with us on our journey.
Over the years we have partnered with many companies in the further development of MS Resources. We have had deep faith that we would be able to do what we set out to do, hold the agency up and nurture it in the same ways we do all children. Looking into today’s society, we must acknowledge how very fortunate we have been to have all of you reading this today in our midst.
We must continue to renew our events, make them appealing to the masses, we must revitalize our educational programs to make sure content and speakers are informative and reinvest in our relationships with each person in our world! Our best and most delicate resource is our people and they need to know how valuable they are to us. It never mattered to us what the race, sex, religious preference or level of education one held, we are united as one in the army against MS. We are in an ever changing environment and we must adapt, regroup and move forward.
During this special, amazing anniversary year (20th), it is my hope that our clients in our service area will reach out to all their families, friends and neighbors and tell them all about MS Resources and share ways that we may have assisted them.
Hopefully this will result in new people into the fold with a desire to roll up their sleeves and join the fight.
With these few personal thoughts, I would again like to take this opportunity to mention how gratifying, rewarding and stimulating it has been to serve those with MS. It has been a love-affair, a genuine, deep- rooted desire to help that has kept me moving.
I am eager to see what the next 20 years may hold for all of us!
Fish Bowl 2018
Calling all Bowlers: The 24th Annual Fish Bowl to benefit MS Resources will be on Saturday, April 21st at the Bowl Mor Lanes on Highland Ave. in East Syracuse. Join Kathy Vadala in this event and the many many supporters who make it all possible.
There will be raffles, door prizes, food and so much more…$25 per bowler or $10 per non bowler for lunch. Teams of 5 please!
Call today for more information: 315-438-4790. See you on the lanes!
HUGE FUND RAISER
HOSTED BY: MATT DENO
This is a HUGE event and we invite everyone to join the fun.
Details : This annual event to benefit Multiple Sclerosis Resources of Central New York will feature basket raffles, silent auction items, 50/50 raffles, food, beer, soft drinks, and LOTS OF FUN! $20 per person
Rosie’s Sports Bar
1443 W. Genesee St. Syracuse NY 13204
April 14th 1PM – 5PM
Call the office for more info: 315-438-4790
Come and enjoy food, drink and bid on a some fantastic auction items and help us raise HUGE funds.
HELP SUPPORT MS & RUDY SCHMID
Facebook Users – Our friends at Rudy Schmid are donating $2 to MS Resources for each new like to their facebook page through April. To help us, “Like” Rudy Schmid Inc. Total Car Care. Spread the word.
Thank you & Rudy Schmid.
9th Annual Home Tour and Spring Open House
Location: At Between Us Sisters, 6170 Valley Mills Street in Munnsville, NY.
Date: April 14, 2018 , Time: 10 a.m. to 4p.m. , Cost: $5.00
Each year the owners, Gwen and Michele open their homes and shop for this event. It allows customers to see the products they sell in their shop in use in their homes. They don’t just sell them, they believe in them.
All proceeds of the Home Tour Tickets as well as 10% of our sales for that day are donated to MS Resources. Stop by and visit the sale. You can shop early and then head to Syracuse to the event at Rosie’s Sports Bar. Spend an entire day supporting MS Resources and the valuable work done by them.
Women’s Weekend Applications
The Women’s Weekend Get-Away is scheduled for June 8 -10, 2018 at the White Eagle Conference Center in Hamilton, New York. Please call for an application. Returned applications will be reserved a spot. Call the office for more details: (315) 438-4790.
Summer Clambake Scheduled
Save the date: August 5, 2018 1PM -5PM : The Spinning Wheel – Thompson Rd. N. Syracuse
We are looking for raffle items to use in our silent auction. More details to follow….
Syracuse Walk Wrap-Up 2018
Pledges are still coming!!!! Figures to date are: Syracuse Pledges – over $52,000.
Congrats to our Top 10 Highest Individual Fund Raisers
1st Susan Rusinko – Auburn NY
2nd Kimberly Berger – Syracuse NY
3rd Bill Jackson – Syracuse NY
4th AnneMarie Fleet – N. Syracuse NY
5th Donna Denison – Cazenovia NY
6th Trisha Evans – N. Syracuse NY
7th Susan Dahl – E. Syracuse NY
8th Barbara Conrad – Geneva NY
9th Carolyn Vickery – Phoenix NY
10th Kathy Perez – Syracuse NY
Call us if you need us…..
Multiple Sclerosis Resources of CNY, Inc. ® is a source of information concerning topics on Multiple Sclerosis. The information provided to you is derived from professionals in the field and do not represent our recommendations or opinions. We do not endorse any products, services or specific treatments. For the best advice for you, please consult your physician.
There have been several changes made to the way the Pharmaceutical companies market their programs. Most have asked us to email them. Please check your email messages for these. Should you be looking for a program in your area, contact the office and we can see if we have received any notifications.
When you do receive a flyer, please respond to the telephone number indicated for reservations. We cannot take reservations for any drug company programs.
MS Resources is planning to do a few of their own programs, so please watch your mailboxes for these flyers.
Hope to see you at one of the programs or events that is scheduled.
WE ARE ALL SO PROUD TO BE ABLE TO ASSIST OUR CLIENTS IN OUR SERVICE AREA…
Newsletter is written and edited by: Annette Simiele
Call (315) 438-4790/1-800-975-2404
Fax (315) 438-4704
Website – www.msresources.org